Feels like a long silence! Where to begin... After a few lovely days in school and a tiny bit of normality, Lola developed chest pains on Thursday evening. Eventually they became so uncomfortable that she was admitted to Ipswich hospital for an ECG and chest xray. Thankfully, they appeared fine, but it seems that she has developed gastritis and mucusitis - inflammation and ulceration in her oesophagus and stomach lining. She has been in a lot of discomfort and unable to eat as a result and now has a nasal gastric tube to allow her to regain some nutrition through over-night feeds. It was truly awful to see her so upset and uncomfortable when the tube was fitted. It must have hurt so much because of the ulcers inside and it was the first time I have heard her say "Why me?" She has been so philosophical so far... but I was asking it too.
Since Friday she has had a temperature and undiagnosed infection, so more IV antibiotics and splendid isolation in Ipswich hospital. Yesterday, she was transferred to Addenbrooks for assessments and an update MRI scan of her tumour. We should get some results tomorrow, though no-one really explained what they would be looking for... I suppose evidence that the tumour is shrinking in response to the chemo. I'm missing her like crazy, I think because she looked so poorly when I left the hospital on Sunday night. Martin says she is eating bread and jam, which is fantastic, and her temperature has fallen, so perhaps she will be home again by tomorrow night? Unfortunately, I'm not allowed onto the ward until tomorrow because I was sick yesterday.... self-inflicted maple syrup poisoning!