22 January 2010

It's late... i didn't realise the time! Just back from my 2 day stint at Addenbrooks with Lola, collected Nancy and Greta from Michelle and Guy next door, loaded the washing machine and taken a gigantic Tesco delivery.... suddenly it's 1130pm! Lola will be home, all being well, on Sunday night, but tomorrow I am off to Sadler's Wells with Sarah to watch Swan Lake... the all male version...can't wait!

Hard to believe Lola will only have one more round of chemotherapy before surgery. Having been so well since Christmas, it felt hard to take Lola back to Cambridge this time. Everything was thrown a little askew as the hospital realised on Monday afternoon that she needed several crucial tests done before chemo could take place. Having been all psyched up for a Tuesday start, we were told that things would be delayed until at least Thursday. Lola deals with the treatment incredibly bravely, and is very philosophical about all the poking and prodding she experiences, but what she finds really challenging is last minute change. She never, ever complains about going in for treatment but obviously prepares mentally, and any deviations from the plan upset her.

We were at Addenbrooks for 8am on Tuesday and her kidneys and heart were put through their paces. Thankfully, she's a tough cookie and despite the hammering her organs are taking from the drugs, everything is functioning just as it should. She also had an MRI scan of her tumour. On Wednesday, they told us that these results showed the tumour was 'stable'. Basically, it hasn't grown. All the anxieties I'd felt at diagnosis came flooding back. I realised that, despite taking her along for the scan, I was completely unsure of what they were really looking for; what was good and what was not so good. 'Stable' didn't sound great.

The first Doctor explained over the phone that, in an ideal world, the tumour would have shrunk, but that they were satisfied with no increase. The second doctor, admitting Lola for chemo on Thursday, said that they were happy with the results which showed the tumour to be 'at worst' stable. I finally spoke to Amos, Lola's oncologist, today, who told me in no uncertain terms that they would not expect the bone to shrink and that what they saw confirmed that she was 'responding well' to chemotherapy. I can't really explain the relief at hearing what appears to me to be positive information from the person who really counts!

The results have been forwarded to Birmingham and surgery will be booked for around 6 weeks time, pending the outcome of the CT scan of Lola's chest, taken today. They are hoping that the two tiny spots in her lungs, which may or may not have been metastases, will have either disappeared with the chemo or remain and show that they are in fact clusters of cells and nothing to do with the cancer. Lola said today that she is 'sort of looking forward' to her surgery. I suppose we have been talking about it for a while and it's a milestone she wants to pass now.

3 comments:

  1. Great news, so glad to hear everything is going to plan so far. Yourself and Lola are simply superstars. Lola, tessies scan was okay so it turns out she does have epilepsy and has to take tablets everyday for ever now!! Should be interesting trying to get her to swallow them?! I bet she won't be as co-operative as you!! xx Love Tracey xx

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  2. Y'know what? That Amos is a top bloke!
    Keep it up, Lola you are doing a brilliant job of kicking that cancer up the butt! (sh! Want to say a really rude word here but not sure who will read this- so you have to imagine it!)
    xxx sara

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  3. Lola - hope you got home Sunday as expected and Helen - trust that Swan Lake was all you expected it to be. Looking forward to more news! Love Carol

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